Australian Wolf Hirschhorn Syndrome Support Group Inc    


Wolf Hirschhorn Syndrome

Wolf-Hirschhorn Syndrome (WHS), also known as Wolf Syndrome along with Pitt Rogers Danks Syndrome (PRDS), are both rare chromosomal disorders caused by a deletion from the short (p) arm of the fourth chromosome known as 4 p minus (4p-)

Support Group

Established in 1996, the Australian Wolf Hirschhorn Syndrome Support Group is a voluntary not-for-profit self-help organisation dedicated to educating parents about Wolf-Hirschhorn Syndrome and networking them with other parents of affected children. We currently are in contact with over 40 families from all over Australia and New Zealand

Our Mission

Contact us

The National Coordinator can be contacted by

Writing to AWHSSG
or e-mail

Or if you would prefer to Contact a Parent in your region
Click Here for Local Regional Contacts

This website is intended to enable parents and carers to contact us and and as a resource to find other information on the web.
All information contained herein are personal opinions and from personal experience and therefore should only be used as a guide and are not intended to replace professional advice

Last Updated 14/08/2016

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